Announcement and a little extra!

I have several announcements to make: first, I'm going to be writing a book about the locked-in syndrome. Second, I will post the chapters, here on this BLOG, for you to read first. And finally, Celia has graciously agreed to write the forward for my book. 

I'm pretty excited, that I'm doing something that I have dreamt of doing, all my life. At least since high school. 

I'm especially excited, and very honored, that my most respected friend, has agreed to write the forward to my book. 

To the regular reader, it may at times seem repetitive. If so, I apologize to you. 

My goal is to give the reader an authentic look at what my life is truly like. A lot of what I read, parallels, what I experience in my life. There are, however, things not mentioned in anything I've read, which are true for me. 

I'm excited about the prospect, of the next few months. There is much work to be done, I'm aware, but when the time has passed, I'll be able to call myself an author! 

Grab hold of your dreams and hold on tight. Like a good friend of mine likes to say, ride or die!


Addendum:

My role has always been as a silent partner. The reality is,  I don’t do much. I mention this because most people don’t realize how much effort it takes for Bob to do the amazing things he has done. 

AAC (Augmentative and Alternative Communication) takes time to master. It can be fatiguing, and frustrating, and technology doesn’t always behave. That being said, Bob has persevered and has been graciously patient with me. 

Both Bob and I are thankful for everyone who has helped support his journey whether it be through donations to obtain his device, following his blog, or buying a T-shirt.

Bob is a very special person in my life. To be honest, I talk to him more than I talk to people I have known for years. We have both shared parts of our lives and are connected on many levels. Two unlikely friends, brought together by a life-changing event. 

Bob is truly a testament to the importance of not discounting a person's ability, who has difficulty communicating, in the traditional sense. 

 I am incredibly proud of the accomplishments, attitude, kindness, and grace that he has shown. There is much to be said about a person who is able to find a purpose, a drive when life looks different than you may have pictured. True wisdom is focusing on the things you CAN do…. it's a productive approach to fulfilling a quest to redefine, quality of life. 

I told Bob I always felt like I didn’t fit in anywhere and that throughout my life I have gravitated toward individuals with that I felt connected. In turn, I have grown to have a loving group of people, a chosen family, I call the misfits. 

Thank you, Bob, for being a fellow misfit. Ride or die for life❤️ - Celia 

Comments

  1. AnonymousAugust 20, 2022 at 5:21 PM

    Very cool! I love to read your blog, and look forward to seeing you achieve your dream of authorship. Margaret

    ReplyDelete

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